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Conditions

Browse published guides in this section.

Published guides

Hereditary transthyretin amyloidosis and neuropathy

Written by someone living with neuropathy: what hereditary transthyretin amyloidosis is, a map of its many names (ATTRv, hATTR, FAP, V30M), the red flags that should make a doctor think of it, and why getting the exact diagnosis can open the door to disease-specific treatment.

Charcot-Marie-Tooth disease: a guide to inherited neuropathy

Written by someone living with neuropathy: what Charcot–Marie–Tooth disease is, how it is inherited, what gene, variant and type mean, why it varies so much even within families, what helps today, and why it is not the same as Charcot foot.

Guillain–Barré syndrome and rapidly worsening nerve symptoms

Written by someone living with neuropathy: what Guillain–Barré syndrome is, the symptoms and speed that make it an emergency, how it differs from ordinary chronic neuropathy and CIDP, what usually happens in hospital, and what recovery can look like.

CIDP: how diagnosis and treatment differ from other neuropathies

Written by someone living with neuropathy: what CIDP is, how the current guideline separates it from ordinary neuropathy and Guillain–Barré syndrome, why misdiagnosis is common, which treatments are used and how their effect is measured, and why immune treatment is not meant for every neuropathy.

Can medicines cause neuropathy? How to review a medication list safely

Written by someone living with neuropathy: which kinds of medicines are linked to nerve damage and how firmly, how doctors judge whether a medicine is the cause, a timeline you can fill in, and how to prepare a safe medication review without stopping anything on your own.